data sharing

As the complexity of clinical trials continues to grow, increased data sharing and interoperability will become more important, according to panelists participating at a House Energy and Commerce Committee hearing Wednesday...

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Ten years after the launch of the Bio-IT World Conference & Expo series in Boston, the conference made its debut in Asia in the sparkling Marina Bay Sands convention center. The trio of speakers who opened the three-day meeting was veteran HIV researcher David Ho, bio-IT consultant Chris Dagdigian, and AstraZeneca bioinformatician Yaron Turpaz.

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Defense Strategies Institute (DSI) brought together senior leadership in October 2011 to look at the iEHR architectural roadmap that was released last spring, and now they are answering the call of “How to achieve success across domain data sharing and the iEHR while working towards clinically relevant, technically feasible, and financially viable innovations.”  Read More »

With billions of dollars of stimulus funds available and the President and state governors promoting them, electronic health records (EHRs) are likely to become commonplace in the U.S. health care system. [...] While EHRs are praised for their promise to increase efficiency and safety, it is still an open question how much of those benefits will be realized or when. Read More »

Elsevier, the information analytics business specializing in science and health, has announced it is donating its Unified Data Model (UDM) to The Pistoia Alliance, a global, not-for-profit alliance that works to lower barriers to innovation in life sciences R&D. The UDM is an XML file format originally developed by Elsevier to improve the upload of external data sets into its tools. It will now be developed and extended under the stewardship of The Pistoia Alliance, with the ultimate aim of publishing an open and freely available format for the storage and exchange of drug discovery data. The UDM will become a common model allowing data to be easily shared and integrated between parties. This will greatly accelerate drug discovery research and overcome a shared barrier to collaboration...

Less than one in three U.S. hospitals can find, send, and receive electronic medical records for patients who receive care somewhere else, a new study suggests. Just 30 percent of hospitals had achieved so-called interoperability as of 2015, the study found. While that’s slight improvement over the previous year, when 25 percent met this goal, it shows hospitals still have a long way to go, researchers report in Health Affairs...

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“I am going to my grave with my disk drive in my cold dead hands.” So a senior scientist told a junior researcher, who related the tale at a 2013 US National Science Foundation (NSF) workshop on the reuse of physical samples in the geosciences. Sharing — of data sets, metadata, models, software and other resources — promises to speed discoveries, improve reproducibility and expand economic development. But it requires people to change. Overcoming personal reluctance is doubly difficult because many aspects of the scientific enterprise undermine sharing. Right now, most departments, funders and journals presume that data are proprietary from collection to publication..

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