The Genomic Data Commons, a next-generation platform that enables unprecedented data access, analysis and sharing for cancer research, publicly launched at the University of Chicago on June 6, opening the door to discoveries for this complex set of diseases. The Genomic Data Commons went live with approximately 4.1 petabytes of data from National Cancer Institute-supported research programs, including some of the largest and most comprehensive cancer genomics datasets in the world...
data standardization
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2022 HL7 Working Group Meeting Continues to Advance a Public Health Agenda
By Daryl Chertcoff | October 7, 2022
The HLN Consulting team attended the HL7 36th Annual Plenary & Working Group Meeting (WGM) held in Baltimore, MD, September 17 – 23, 2022. More than 500 attendees, representing all aspects of the industry, were a part of the WGM in-person meeting after 2 years of virtual meetings. The seven day event started on Saturday with a weekend connectathon. This meeting offered an opportunity for attendees to come together and collaborate. It was a valuable meeting especially for people involved in standards development around healthcare. Read More »
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Accessing & Using APIs from Major EMR Vendors–Some Data at Last!
Matthew Holt | The Healthcare Blog | September 19, 2016
Information blocking, Siloed data. No real inter-operability. Standards that aren’t standards. In the last few years, the clamor about the problems accessing personal health data has grown as the use of electronic medical records (EMRs) increased post the Federally-funded HITECH program. But at Health 2.0 where we focus on newer health tech startups using SMAC (Social/Sensor; Mobile OS; Cloud; Analytics) technologies, the common complaint we’ve heard has been that the legacy–usually client-server based–EMR vendors won’t let the newer vendors integrate with them...
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Congress & GAO Take Aim At DOD-VA Health Records Program
Amber Corrin and Camille Tuutti | FCW | March 7, 2013
When the Defense and Veterans Affairs departments last month announced a change of course in a long-awaited joint health records program, it sparked concerns at the Government Accountability Office. Now, the program faces further challenges from Capitol Hill. Read More »
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Defense And VA To Congress On Health Records: It's The Data, Not The Software
Bob Brewin | Nextgov | July 10, 2013
Top officials at the Defense and Veterans Affairs departments said Wednesday they will create a system to exchange standard clinical health data, which will allow the departments to develop a single, shared electronic health record without the need to build a joint system from scratch. Read More »
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Genomic Data Commons Heralds New Era of Data Sharing for Cancer Research
Press Release |
University of Chicago |
June 6, 2016
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House Committee Worried DoD, VA 'Moving The Goal Posts' On e-Health Records
Jack Moore | FederalNewsRadio.com | February 27, 2013
A House Veterans Affairs Committee hearing on the decision by the Defense and Veterans Affairs Departments to scale back plans for a joint integrated electronic-health records systems dredged up longstanding issues with the two departments' EHR efforts. Read More »
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How Hospital Administrators Are Obstructing Medical Record Exchange APIs
Bruce Fryer | Programmable Web | September 12, 2017
Medical record exchange is a major topic in healthcare, needed to improve healthcare outcomes (and reduce costs) for multiple patients receiving care at multiple sites. The discussion in the industry primarily focuses on technical challenges. In reality, many of the technical challenges have been addressed. A big factor in the inability of medical record exchange is the hospitals themselves. They block information and APIs. I’ve had two experiences with getting medical records...
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How Hospital Administrators Are Obstructing Medical Record Exchange APIs
Bruce Fryer | Programmable Web | September 12, 2017
Medical record exchange is a major topic in healthcare, needed to improve healthcare outcomes (and reduce costs) for multiple patients receiving care at multiple sites. The discussion in the industry primarily focuses on technical challenges. In reality, many of the technical challenges have been addressed. A big factor in the inability of medical record exchange is the hospitals themselves. They block information and APIs. I’ve had two experiences with getting medical records...
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i2b2 Foundation and tranSMART Foundation Merge to Become the i2b2 tranSMART Foundation
Press Release |
The i2b2 tranSMART Foundation |
May 25, 2017
The tranSMART and i2b2 foundations today announce the completion of their merger to become the i2b2 tranSMART Foundation. The new organization is a global non-profit open-source foundation facilitating the further development of precision medicine and bringing it to practice. The mission of the i2b2 tranSMART Foundation is to enable effective collaboration for precision medicine through the sharing, integration, standardization, and analysis of heterogeneous data from healthcare and research; through engagement and mobilization of a life sciences focused open-source, open-data community...
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Jackie Mulrooney
Jackie Mulrooney is Owner, Founder, and President of J P Systems, Inc., a Healthcare Information Technology (Health IT) consulting firm that was named one of the 50 Fastest Growing Women-Owned/Led Companies of 2020. J P Systems specializes in Healthcare Informatics through terminology mapping, data standardization, enterprise data architecture, and data quality improvement. Since 1999, Mrs. Mulrooney and her renowned SMEs have worked with the Department of Veterans Affairs (VA), Veterans Health Administration (VHA)
Lindsay Westervelt
Lindsay Westervelt is a Technical Writer and Project Support Specialist for J P Systems, Inc. At J P Systems, Ms. Westervelt leads social media content production efforts and assists with designing and developing J P Systems’ marketing materials. She also edits project deliverables and manages client onboarding tasks. J P Systems is a Healthcare Information Technology (Health IT) consulting firm that was named one of the 50 Fastest Growing Women-Owned/Led Companies of 2020. The firm specializes in Healthcare Informatics through terminology mapping, data standardization, enterprise data architecture, and data quality improvement.
Nature Journal on the Need for Clinical-Trial Data Sharing Regulations
Editorial | Nature | May 17, 2016
Governments need to tighten regulation if the sharing of clinical-trial data is to succeed. Clinical science has a compatibility problem. Although there are set protocols to test medicines and to treat patients, no such standards exist to compare clinical-trial data. The problem arises because each research group has a preferred method of collecting and categorizing results. Differences can be as great as omitting or including the gender and ethnicity of patients enrolled, or as mundane as the vocabulary used in medical records...
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ONC Patient Matching Project Moving Forward...Slowly
By Noam H. Arzt, Ph.D. | September 18, 2019
Last week, the Office of the National Coordinator for Health Information Technology (ONC) released the final report from its Patient Matching, Aggregation, and Linking (PMAL) Project, as well as an additional report describing a pilot project to test the Patient Demographic Data Quality Framework (PDDQ) to Support Patient Matching that was released several years ago. Funded from June 2015 through September 2018 by the HHS Office of the Assistant Secretary for Planning and Evaluation (ASPE) through the Patient-Centered Outcomes Research (PCOR) Trust Fund, PMAL was one of the activities I described in an earlier post. The Final Report reviews the four challenged of patient matching and linking that the PMAL project attempted to address...
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tranSMART Foundation 2016 Annual Meeting
The tranSMART Foundation Annual Conference will be held at the University of California at San Diego (UCSD) in La Jolla, CA on October 25-27, 2016. The tranSMART Foundation is a non-profit organization whose aim is to provide a global open source, open data, cloud-based knowledge management platform that allows scientists to share pre-competitive translational research data...
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