Office for Civil Rights
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Flagship Project on Precision Medicine for Underserved Women Will Advance Learning Health System
Marc Wine, a supporter of the LHS - Precision Medicine PCOS Project and participant in Learning Health Community initiatives, who attended the summit hosted by the president said, "One goal is to seek collaboration with underserved communities in genomics, open data and integrative medicine. This will result in engaging individual patients in ways that will move them from dependency on fragmented healthcare to the point where patients can use their own evidence-based genetic information to make the very best health decisions." The Precision Medicine PCOS Project is aimed at developing a protocol for women with PCOS while employing an integrative medicine approach to treatment based on the participant's molecular makeup, clinical data and available scientific knowledge.
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ONC Interoperability Meeting Raises More Questions Than Answers
ONC’s first public event under the new administration was very well organized and run. Eight leading health information exchange incumbents were able to describe their current approaches and plans, the patient advocate position was clearly stated, and a nice synthesis of the issues raised by the trusted framework approach to interoperability was prepared by a consulting organization. Much to ONC’s credit, they went out of their way to provide access and public comment to an extent that is unprecedented in my experience. Slides and recordings will be posted soon and a 30-day comment period runs through August 24. Kudos to ONC...
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Providers, vendors both to blame for information blocking
Most information blocking in healthcare is "beyond the current reach" of federal agencies to detect, investigate and address, according to the Office of the National Coordinator for Health IT's report to Congress published Friday. Read More »
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Why ONC Seeks New Authorities Over Health Data Blocking
Increases in EHR adoption and the growth of EHR use since the passing of the law creating the EHR Incentive Programs and defining the authorities of the Office of the National Coordinator require Congress to provide the federal agency with new powers related to health data blocking. That's what National Coordinator Karen DeSalvo, MD, MPH, MSc, told members of the House Committee on Oversight and Government Reform during a Subcommittee on Information Technology hearing on Tuesday...
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