patient-controlled data

Mr. Nagpal argues the issue here is one of who controls patient data — is it the patients themselves or care providers and vendors? He says if patients control their data — choose who gets access to it and see who's doing what with it — many of the proposed barriers to interoperability would dissolve. "Being able to access our own information from across our care team in a joined up manner, and then being able to determine who can access that information and for what uses, I think of these as fundamental rights," Mr. Nagpal says. "Given these rights, each one of us can grant any member of our care team, including our friends and family, researchers and any innovator with an interesting solution, with access to our data under our control"

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