public health experts

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HHS CTO on the Power of Connection

A learning system for health is not a new concept. It is an ancient instinct to share our experiences and stories. But technology allows us to widen the network of people we can talk with, increase the velocity of those conversations, inject them with more source material, then archive and make them searchable. For patients and caregivers, building that system means connecting people who share a diagnosis so they can share insights with each other – and with researchers. For example, the FDA is now partnering with PatientsLikeMe to explore how patient-reported data can shed light on drug safety.

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The Sequoia Project’s Emergency Preparedness Information Workgroup Publishes Health IT Pandemic Response Planning Recommendations - The Sequoia Project

Press Release | The Sequoia Project | February 28, 2022

The Sequoia Project’s Emergency Preparedness Information Workgroup (EPIW) today published Pandemic Response Insights and Recommendations, a free whitepaper for local, state, and federal emergency preparedness and public health officials and their partners. The workgroup, consisting of emergency preparedness, response, and public health experts, convened over several months to discuss gaps in current solutions. The workgroup recommended ways to make information more readily available to support a more robust and coordinated response to future emergencies.