transparency
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CHOP's Harvest Toolkit Offers Innovative Data Discovery Resource For Biomedical Researchers
A team of informatics experts and biomedical researchers at The Children's Hospital of Philadelphia offers a new software toolkit to help researchers explore complex data sets without having to become database technicians themselves. Harvest is an open-source highly interactive framework designed by CHOP's Center for Biomedical Informatics. Read More »
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Clinical Trial Reporting Failures Can Harm Research, Patients
Hospitals, medical schools, businesses, and even the National Institutes of Health are routinely violating a federal law requiring clinical trials to be reported to the public, a STAT investigation recently found. In response, we asked experts to offer their thoughts on why low rates of clinical trial reporting is a problem, and what can be done about it...
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Clinton & Topol Preach the Importance of Evolution in Healthcare
For all of their differences, former U.S. President Bill Clinton and cardiologist Eric Topol--the West Endowed Chair of Innovative Medicine at The Scripps Research Institute in La Jolla, Calif.--delivered a similar message in their respective keynote addresses this week at the Healthcare Information and Management Systems Society's annual conference... Read More »
CMS Launches Chief Data Officer Position
Earlier this month, we reported how healthcare is increasingly embracing a new C-suite position: chief data officer. Now, the Centers for Medicare & Medicaid Services is getting in on the act, with the appointment of its first CDO, Niall Brennan...
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CMS Makes Medicare, Medicaid Data Easier For Researchers To Access
Researchers who want to study population health using the vast stores of Medicare and Medicaid data will no longer have to order it and wait for the federal government to ship them encrypted data files. Rather, they can now access the information virtually [...]. Read More »
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College Students Tackle PTSD at First DC Hackathon
More than 50 college students from across the world gathered this previous weekend at HackDC 2015, the first Hackathon dedicated to crowdsourcing innovative ways to address the serious problem of Post-Traumatic Stress Disorder (PTSD) by creating mobile applications and solutions. The event, which started on Friday, went through Sunday afternoon. Held at the Richard J. Ernst Community Cultural Center in the Annandale Campus of the Northern Virginia Community Colleges (NVCC), HackDC 2015 provided the participants with access to food, sleeping facilities, and showers so that they could work straight through the weekend.
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Commentary: IT Is Critical To Preventing Fraud And Waste In Austere Times
In the face of intense and growing budget pressures, taxpayers, legislators, and commentators of all political stripes want greater transparency and accountability in government spending. Read More »
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CommonWell Is A Shame And A Missed Opportunity
The big news at HIMSS13 was the unveiling of CommonWell (Cerner, McKesson, Allscripts, athenahealth, Greenway and RelayHealth) to “get the ball rolling” on data exchange across disparate technologies. The shame is that another program with opaque governance by the largest incumbents in health IT is being passed off as progress. Read More »
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CommonWell Plans EHR Pilot; Denies Data Will Be For Sale
A joint effort to provide interoperability among the electronic health records systems of competing vendors is proceeding without a great deal of transparency and openness outside of the participating members. Read More »
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Companies And Open Science
There is an argument that says we should not be making simple compounds in academic research labs, but rather using specialist services to make molecules with which we then do interesting science. Read More »
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Consumer Reports Dives into Healthcare Ratings
Consumer Reports magazine announced it's getting into the growing business of publishing public ratings of hospitals and private physicians. It's only the latest move in the trend toward improving consumer information online amid growing public and political pressure for transparency. Meanwhile, it will likely be part of another trend, as well--that of hospitals and physicians criticizing hospital and physician ranking sites. Read More »
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Cory Doctorow on Influencing the Future Instead of Predicting It
Cory Doctorow is good with words. He just prefers stringing them into sentences, not subroutines. "I was a software developer," he says. "I'm much better at writing science fiction novels. Like, seriously."..."There's a certain efficiency to writing code," Doctorow says. "It can be a very powerful intervention. Look at the tiny number of people who hack on Tor, and the massive impact they've had around the world. That's the upside of code." But writing code just isn't for him. One of today's most active, vocal, and recognized champions of digital rights, eschewing a programming career is rather striking. After all, if what Lawrence Lessig says is true—if, in the 21st Century, code is the fulcrum of power—then becoming a coder would seem tantamount to Doctorow's interests, what he calls the intersection of "technology and liberation"...
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Court Rejects 'State Secrets' Excuse For Why Feds Want Out Of Lawsuit Over NSA Warrantless Wiretapping
While there have been a number of new revelations lately about the NSA's surveillance efforts, there have been some long-running on-going legal disputes about it as well. One of the biggest is Jewel vs. the NSA. Read More »
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Court Upholds Rx Transparency Law
Advocates for healthcare transparency scored a small win in California, where the state Supreme Court upheld a law requiring pharmacy benefit managers to disclose their pricing. Read More »
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Creating Affordable Solutions with Open Source Tools
Open source is often the heart of many civic technology solutions because using open source leverages the minds of many. Small web solution providers, in particular, often turn to open source as a way to deliver services without having to reinvent the wheel. I recently found out about Digital Deployment, a civic web solution provider in Sacramento, that leverages open source, and so I asked them to share their story with me. I chatted on the phone with Chief Operating Officer Sloane Dell'Orto and Lead Software Engineer Dennis Stevense...
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