I recently participated in a nationwide (not the United States) healthcare IT planning effort and one recommendation was universal availability of patient portals. Several reviewers commented that patient portal is a loaded term - it implies that clinicians control the data and patients are given a view into it. One person said, “that’s so 10 years ago.” BIDMC has been working with patient/family shared medical records, Open Notes and various consumer-facing apps since 1999. Over that time we've discovered that patients typically do not want raw data, they want something actionable - the tools necessary to assist their navigation through the healthcare process...
What is Patient and Family Engagement?
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Open Is A Means, Not A Movement
In the humble beginnings of the GNU and Linux projects, open source was a primitive and narrowly defined idea. It applied only to programming, and was a largely legal designation that sought to guarantee that source code remained available to users even as others augmented it through subsequent contributions. Now, thirty years later, "open" is sweeping the enterprise. On top of "open source," we also have "open data," "open management," "open design," "open organizations,"—and even just "open," which we often take to imply something vague about a progressive policy. This has all gotten a little confusing, and I believe it would be useful to step back and consider what "open" really means.
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'Open Source' Is Not 'Free Software'
In the open source universe, using terms such as FLOSS (Free/Libre and Open Source Software) is common and represents a casual conflation of the terms open source and free software, which are often used interchangeably. I would be remiss if I didn't also admit that I have been guilty of same. I won't be doing that anymore—or at least I'll try not to—for a simple reason: Using the terms interchangeably is dangerous to the goals of free software and open media advocates (read "anti-DRM"). To continue this practice is to undermine beliefs that are fundamental to free software and associated movement...
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6 Ways to Use Open Tools to Better Support Indian Languages
India is a large and a populated country that makes up a large base of Google consumers. So in recent years, Google's widened support of world languages for its various products has been a blessing. It has specifically helped Indian people grow their use of and participation on the Internet. For one, Google Summer of Code helps students experiment with and build prototypes that enhance language-based software. Another way is through Google Translate, a web and app-based platform that provides machine translation from one language to another. It is predominantly maintained and serviced by volunteer contributionss...
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Georgia State Government Earns National Recognition for Web Accessibility
The state of Georgia was nationally recognized last month by the National Association of State CIOs for its Accessible Platform Initiative. The initiative is the first step in Georgia's drive to improve access to all its digital properties. It updated code and designs on the state's enterprise web platform to meet modern accessibility guidelines in a move that impacted nearly 80 state websites. The national recognition for this initiative is not only a feather in Georgia's cap, it's yet another win for open source software and a testament to the benefits of an enterprise web platform. Opensource.com has published articles in the past about Georgia's enterprise platform as a service, as well as the product strategy for the platform...
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Three Words That Health Care Should Stop Using: Insurance, Market, and Quality (Part 2 of 2)
Andy Oram
Endless organizations such as the National Association for Healthcare Quality (NAHQ) and the Agency for Healthcare Research and Quality (AHRQ) collect quality measures, and CMS has tried strenuously to include quality measures in Meaningful Use and the new MACRA program. We actually have not a dearth of quality measures, but a surfeit. Doctors feel overwhelmed with these measures. They are difficult to collect, and we don’t know how to combine them to create easy reports that patients can act on. There is a difference between completing a successful surgery, caring for things such as pain and infection prevention after surgery, and creating a follow-up plan that minimizes the chance of readmission. All those things (and many more) are elements of quality.
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Health Care, Stop Using: Insurance, Market, and Quality (Part 1 of 2)
The health care insurance industry looks like no other insurance
Andy Oram
industry in the world. When we think of insurance, we think of paying semi-annually into a fund we hope we never need to use. But perhaps every twenty years or so, we suffer damage to our car, our house, or our business, and the insurance kicks in. That may have been true for healthcare 70 years ago, when you wouldn’t see the doctor unless you fell into a pit or came down with some illness they likely couldn’t cure anyway.
The insurance model is totally unsuited for health care today...
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Why We Shouldn’t Call Apple ResearchKit and CareKit ‘Platforms’
It’s no secret that getting people to engage in their health is one of our generation’s biggest challenges. Digital health engagement, especially, is often discussed as “a huge opportunity,” but the reality is that while people are interested in their health, it’s still incredibly difficult to get them to use digital tools consistently. Enacting behavior change is still a mostly elusive process...
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Inside Big Pharma's Fight to Block Recreational Marijuana
Marijuana legalization will unleash misery on Arizona, according to a wave of television ads that started rolling out across the state last month. Replete with ominous music, the advertisements feature lawmakers and teachers who paint a bleak future for Arizona’s children if voters approve Proposition 205, a measure that would allow people aged 21 and over to possess an ounce of pot and grow up to six plants for recreational use. “Colorado schools were promised millions in new revenues” when the state approved recreational pot use, says the voiceover in one ad. Instead, schoolchildren were plagued by “marijuana edibles that look like candy”...
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Doctors Name Treatments That Bring Little or No Benefit
Women over 45 do not need a blood test to diagnose the menopause and X-rays are no real help to those with lower back pain, doctors have said. The advice, drawn up by the Academy of Medical Royal Colleges, features on a list of 40 treatments that bring little or no benefit to patients. The list is part of a campaign to reduce the number of unnecessary medical treatments. Patients are also encouraged to ask more questions about procedures. Medical experts from 11 different specialties were asked to identify five treatments or procedures commonly used in their field that were not always necessary or valuable...
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