Cancer Moonshot initiative
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CDISC and TransCelerate Announce New Standard for Breast Cancer to Support Data Sharing for Oncology Research
The need to rapidly and efficiently share new data in cancer research was recently, and powerfully, highlighted by U.S. Vice President Joe Biden as part of the Cancer Moonshot initiative. The Clinical Data Interchange Standards Consortium (CDISC) and TransCelerate BioPharma, Inc. (“TransCelerate”) announce today the open availability of a new CDISC Therapeutic Area (TA) Standard for Breast Cancer. The CDISC global TA standards can streamline the way clinical research is conducted so that data can be readily shared among clinicians, researchers and regulators around the world, thus leading to more rapid and “smarter” research...
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Interoperability and Patient Access Just Became Law
When President Obama signed the 21st Century Cures Act (HR 34) into law in December, the world of healthcare IT was turned on its ear. Interoperability and access – two concepts that have eluded old-school healthcare IT vendors – became enshrined as the cornerstone of the newest and most comprehensive healthcare innovation legislation to date. In addition, although the Act didn’t intend to push healthcare IT into the cloud age, it may very well have, as the required access and sharing will be exceedingly difficult to accomplish without an agile cloud-based system...
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Is The 1.5+ Trillion Dollar HITECH Act a Failure?
Hopefully, the public statements made by President Obama and Vice President Biden will lead to a public debate over the monumental problems that the HITECH Act and proprietary EHR vendors have caused the American people. While the press continues to report the figure of $35 billion as the cost of implementing EHRs, that figure does not tell the entire story. Perhaps the next step is to provide accountability and transparency. That would start with firm numbers regarding the real costs of EHR implementations forced on an unprepared healthcare system by the HITECH Act.
- The Future Is Open
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Obama and Biden Blast EHR Vendors for Data Blocking
As they are winding their terms in office, President Barack Obama and Vice President Joe Biden dropped a stink bomb on the health IT industry. Speaking at different events on Friday, January 9th, the President and Vice President both criticized proprietary electronic health record (EHR) vendors as the primary obstacle to the success of their administration’s health care strategy. This is the highest level acknowledgment so far of the serious impact that “lock-in” EHR software vendors are having on America’s medical infrastructure and the ability of physicians to provide medical care.
Patents: The Next Open Access Fight
There’s been a lot of talk lately about the state of publicly funded research. Many, including EFF, have long called on Congress to pass a law requiring that publicly funded research be made available to the public. With strong support for FASTR (the Fair Access to Science and Technology Research Act) in both parties, Vice-President Biden making open access a major component of his Cancer Moonshot initiative, and presumptive presidential nominee Hillary Clinton including access to research in her platform, signs are looking good that Congress will finally pass an open access mandate. It’s just a matter of when...
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VA, DOD, NCI Partner for Precision Medicine Tumor Screening
A new precision medicine partnership between the Department of Veterans Affairs (VA), the Department of Defense (DoD) and the National Cancer Institute (NCI) will create the nation's first system that routinely screens tumors for gene and protein information in hopes of providing targeted, individualized therapies. The new program, the Applied Proteogenomics Organizational Learning and Outcomes consortium (APOLLO), is part of the Cancer Moonshot Initiative...
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