clinical data research networks (CDRNs)

See the following -

Comparative Effectiveness Research Improves Outcomes, Kaiser Finds

Julie Bird | FierceHealthcare | June 10, 2013

The national Patient-Centered Outcomes Research Institute (PCORI) can look to Kaiser Permanente to see how comparative effectiveness research can enhance healthcare. Read More »

Patient-Centered Outcomes Research Institute To Invest Up To $68 Million To Develop A National Patient-Centered Clinical Research Network

Press Release | The Patient-Centered Outcomes Research Institute (PCORI) | April 23, 2013

The Patient-Centered Outcomes Research Institute (PCORI) issued two funding announcements today for up to $68 million to support development of a National Patient-Centered Clinical Research Network. Read More »

PCORI Announces PCORnet Partner Networks’ Pledge to Facilitate Patients’ Access to Their EHR Data

Press Release | Patient-Centered Outcomes Research Institute (PCORI), National Patient-Centered Clinical Research Network (PCORnet) | February 25, 2016

Today at the Precision Medicine Initiative Summit at the White House, Joe Selby, MD, MPH, Executive Director of the Patient-Centered Outcomes Research Institute (PCORI), announced an initiative to enable individuals to access data in their electronic health records (EHRs) and share it for research that could improve care for their conditions. The initiative involves a pledge by 20 Patient-Powered Research Networks (PPRNs) to help their participating patients more readily obtain information from their EHRs...

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