descriptive metadata reporting
See the following -
Nature Journal on the Need for Clinical-Trial Data Sharing Regulations
Editorial | Nature | May 17, 2016
Governments need to tighten regulation if the sharing of clinical-trial data is to succeed. Clinical science has a compatibility problem. Although there are set protocols to test medicines and to treat patients, no such standards exist to compare clinical-trial data. The problem arises because each research group has a preferred method of collecting and categorizing results. Differences can be as great as omitting or including the gender and ethnicity of patients enrolled, or as mundane as the vocabulary used in medical records...
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