Marcel Swennenhuis

Cattedra: Crossborder collaboration and regional joint registries. An innovative diagnosis of rare immune-mediated inflammatory diseases in children made possible with openEHR. The Cattedra project set up a joint registry and data exchange on rare diseases for children in the area of paediatric rheumatology using open data. The project connects Italian children’s hospital IRCCS Burlo Garofolo in Trieste and Slovenian University Medical Centre Ljubljana (the Division of Paediatrics). With openEHR data models and input forms, the partners aim to share knowledge and work on improving the therapeutic methodologies and diagnostic possibilities of rare immune-mediated inflammatory diseases in children.

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