Precision Medicine Initiative (PMI)

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Benefits of Patient-Generated Health Data, Patient Engagement

Sara Health | Patient Engagement HIT | March 15, 2016

Between improving chronic disease management, boosting the Precision Medicine Initiative, and driving patient satisfaction, patient-generated health data has many healthcare benefits. Through the current health technology boom amongst patients and the near-ubiquitous adoption of EHRs amongst providers, patient-generated health data has become an important aspect of patient engagement...

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Cloudera Contributing to President’s Precision Medicine Initiative

Press Release | Cloudera | February 25, 2016

Precision medicine promises to revolutionize healthcare: to improve diagnosis, to target treatment, and to deliver better care. Living up to that promise requires collaboration and analysis of large amounts of complex data from many sources, privately and securely. Cloudera, the global provider of the fastest, easiest, and most secure data management and analytics platform built on Apache Hadoop and the latest open source technologies, today announced it will support President Barack Obama’s Precision Medicine Initiative (PMI) by providing training and software, and will collaborate with academic and government research institutions doing non-commercial work on the use of data and analytics for healthcare. 

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EHRs to Play Central Role in Precision Medicine Initiative

Greg Slabodkin | Health Data Management | March 5, 2015

...According to Collins, scientific advances also are accelerating progress toward a new era of precision medicine. “Historically, doctors have been forced to base their recommendations for treatment on the expected response of the average patient,” he explained. “But recent advances, including the plummeting costs of DNA sequencing, now make possible a more precise approach to disease management and prevention that takes into account individual differences in genes, environments, and lifestyles.”

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Four Things We Can Do Now to Unlock the Cure for Cancer

As a community we are capable of working together to achieve greater things. If we marshal our resources to work together, I believe we can unlock the cure for cancer. This is a rare opportunity. We need to change the models and shift our culture towards collaboration. We can’t just tweak around the edges — patients and their families can’t afford to wait. An alternative system, where all publicly-funded research and data are required to be shared would allow authors to unlock their content and data for re-use with a global audience, and co-operate towards new discoveries and analysis.

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Government as a Platform for Progress: HHS’s Open Government Plan

Mary K. Wakefield, Ph.D., RN | HHS Blog | October 6, 2016

One of the first actions President Obama took after taking office was to direct federal agencies to find new ways to increase transparency, collaboration and public engagement. Since then, one of our top priorities at HHS has been to make our Department more open and accountable to the people we serve. With the publication of our fourth HHS Open Government Plan, we’re building on our past performance in making government more transparent to the public and engaging in new ways of collaborating and partnering with our stakeholders.

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HHS Launches Cash Contest for Innovative FHIR Apps

Press Release | Department of Health and Human Services | March 1, 2016

The Office of the National Coordinator for Health Information Technology (ONC) announced today a three-part strategy to spur the development of market-ready, user-friendly software applications (apps) for consumers and health care providers...The strategy includes two software app challenges with award prizes totaling $175,000 each: one focused on consumer use and one focused on provider use. Additionally, a competitive funding opportunity of up to $275,000 will support the development of an open resource to make it easier for developers to publish their apps and for providers to discover and compare them...

HIMSS16: Cloudera Demos Open Source Precision Medicine and Healthcare Enterprise Data Hub

Press Release | Cloudera | February 25, 2016

As the Healthcare Information and Management Systems Society (HIMSS) 2016 theme implies -- “transforming health through IT” -- healthcare organizations are increasingly focused on taking advantage of big data to personalize the patient experience and improve clinical outcomes. Cloudera’s commitment to this effort was exemplified this morning, when the company annunced its contributions to President Obama’s Precision Medicine Initiative (PMI). By implementing Cloudera Enterprise, healthcare organizations are better equipped to deliver precision medicine with a modern data platform that facilitates information sharing across silos while remaining HIPAA-compliant...

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New Patient-Focused Commitments to Advance the President’s Precision Medicine Initiative

Press Release | The White House | July 8, 2015

Today, marking six months of progress to advance [Precision Medicine Initiative] PMI, the White House is hosting a Champions of Change event honoring extraordinary individuals from across the country who are making a difference in the lives of patients and driving precision medicine forward. In addition to celebrating these Champions, Federal agencies and private-sector groups are stepping up to the President’s call to action to advance the PMI by making important commitments to... Read More »

OSEHRA 2016 Summit to Address Global Open Health IT Issues as well as the Future of VistA, eHMP and the VA's Veteran's Centric Strategy

The 2016 OSEHRA Summit to be held June 27-29 is sixty days away, and we are very excited about the way it has come together...We will open the Summit on Monday afternoon with the Global Open Health Informatics Workshop. There we will hear about the progress of many programs, including those in India, Saudi Arabia, the United Kingdom, Slovenia and the Hashemite Kingdom of Jordan. This workshop will also address technical issues supporting the global deployment of open source EHRs.

Precision Medicine, Blue Button Among White House Big Data Efforts

Nathan Boroyan | HealthIT Analytics | September 30, 2016

Precision medicine, medical research, and improved patient engagement through initiatives like Blue Button are among the highlight achievements of the Obama Administration’s emphasis on data transparency and information sharing, says a White House fact sheet celebrating the nation’s big data progress. The following is a rundown of some of the specific open-data health efforts of the Obama Administration...

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Sage Bionetworks Advocates for Open Systems in Health Research

Press Release | Sage Bionetworks, mPower | July 20, 2016

Sage Bionetworks, a nonprofit biomedical research organization, continues its work to redefine the way in which health data is gathered, shared and used through the use of open systems, incentives and norms. In a Nature commentary published today, a set of governing principles for digital health data analysis that are designed to maximize the contribution of large-scale digital data to advancing medical care are described. This commentary was co-authored by John Wilbanks, Chief Commons Officer at Sage Bionetworks and Eric Topol, MD, Director of the Scripps Translational Science Institute, and Chief Academic Officer of Scripps Health. The two work together on the NIH-funded Precision Medicine Initiative that was announced earlier this month.

VA, DOD, NCI Partner for Precision Medicine Tumor Screening

Nathan Boroyan | Health IT Analytics | August 26, 2016

A new precision medicine partnership between the Department of Veterans Affairs (VA), the Department of Defense (DoD) and the National Cancer Institute (NCI) will create the nation's first system that routinely screens tumors for gene and protein information in hopes of providing targeted, individualized therapies. The new program, the Applied Proteogenomics Organizational Learning and Outcomes consortium (APOLLO), is part of the Cancer Moonshot Initiative...

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