privacy protection

See the following -

EMSI to Support Sample Collection for the National Institutes of Health's All of Us Research Program

Press Release | EMSI | April 5, 2017

EMSI, a medical information service provider mobilizing networks of technology-enabled health professionals and trained phlebotomists, will engage thousands of direct volunteers in their homes for the ambitious All of Us Research Program, a historic medical research effort led by the National Institutes of Health (NIH)...Precision medicine is an approach to disease treatment and prevention that takes into account individual variability in environment, lifestyle and genes. The All of Us Research Program, which is part of the Precision Medicine Initiative, will lay the foundation for using this approach in clinical practice...

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Halamka's Reflections on US Health IT Policy Trajectory

I’m in China this week, meeting with government, academia, and industry leaders in Guangzhou, Shenzhen, Beijing, Shanghai,  and Suzhou. The twelve hour time difference means that I can work a day in China, followed by a day in Boston. For the next 7 days, I’ll truly be living on both sides of the planet. I recently delivered this policy update about the key developments in healthcare IT policy and sentiment over the past 90 days. I’ve not written a specific summary of the recently released Quality Patient Program proposed rule which provides the detailed regulatory guidance for implementation of MACRA/MIPS, but here’s the excellent 26 page synopsis created by CMS which provides an overview of the 1058 page rule...

Securing Health Data Means Going Well Beyond HIPAA

Jon R. Anderson | GovTech Works | August 17, 2017

A two-decade-old law designed to protect patients’ privacy may be preventing health care organizations from doing more to protect vulnerable health care data from theft or abuse. The Health Insurance Portability and Accountability Act (HIPAA) established strict rules for how health data can be stored and shared. But in making health care providers vigilant about privacy protection, HIPAA may inadvertently distract providers from focusing on something just as important: overall information security...

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Setting A Standard For Digital Public Goods

In June 2020, the Secretary-General of the United Nations published a "Roadmap for Digtal Cooperation." In this report, he expanded on recommendations made a year before, calling on all actors, including the Member States, the United Nations system, the private sector, and others, to promote digital public goods. He says to realize the benefits of increased internet connectivity, open source projects in the form of digital public goods must be at the center. While the term "digital public good" appears as early as April 2017, this report offers the first broadly accepted definition of digital public goods...The Digital Public Goods Alliance (DGPA) translated that definition into a nine-indicator open standard that we hope will serve as a comprehensive, shared definition to promote the discovery, development, use of, and investment in digital public goods for a more equitable world.