Precision Medicine Initiative Needs Help with Data Sharing Barriers

The White House is looking for input from the healthcare industry to identify new information technology activities that can help make President Obama’s $215 million Precision Medicine Initiative a reality.

In particular, the Obama administration wants to move the high-profile initiative beyond the limited data sharing ability of electronic health record systems by allowing individuals to more easily donate their data to the kind of research that will lead to individualized, tailored treatments for patients.

...Among technology areas the administration is interested in promoting is development of robust application programming interfaces in EHR systems that can support patients accessing their clinical data and donating it for research...