Genetic Information Nondiscrimination Act
See the following -
Open Humans Project Allows Volunteers to Share Their Personal Health Data
By Shauna Gordon-McKeon | June 29, 2014
While many researchers encounter no privacy-based barriers to releasing data, those working with human participants, such as doctors, psychologists, and geneticists, have a difficult problem to surmount...A new project, Open Humans, seeks to resolve the issue by finding patients who are willing—even eager—to share their personal data. Read More »
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