proprietary data hoarding
See the following -
How Medical Device Manufacturers Inject Copyright Into Treatments
By Andy Oram | June 8, 2015
Arguments for proprietary data hoarding have been aired in the computer movement for decades, and have been decisively overturned by open source advocates and security experts. The real question is why any patient should be denied access to data that can improve his quality of life and chances of survival. In an age where "patient activation" and "Quantified Self" are buzzwords uttered throughout the medical industry, it is inconceivable that it could tolerate the present situation.