data sharing

See the following -

Key Organizations Come Together in Support of Patient-Centered and Interoperable Health IT

Press Release | National Association for Trusted Exchange, CommonWell Health Alliance | May 3, 2016

The National Association for Trusted Exchange (NATE) and CommonWell Health Alliance® today announced that each would become a member of the other’s organization. They have agreed to establish a mutual synergistic and complementary relationship with the goal of enhancing cross-vendor interoperability to better assure provider and patient access to health data regardless of where care occurs. NATE is a not-for-profit membership association focused on enabling trusted exchange among organizations and individuals with differing regulatory environments and exchange preferences...

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Lawmakers Grill DoD, VA Officials On iEHR In Closed-Door Meeting

Molly Bernhart Walker | FierceGovernmentIT | July 11, 2013

The House Veterans Affairs Committee held a closed-door meeting May 23 to discuss progress toward a VA and Defense Department integrated electronic health record. Officials were "grilled" as lawmakers pressed for answers on the project, said one attendee. Read More »

Montana Workers Get PHRs In ONC Pilot; Florida Medicaid Records Go Online

Anthony Brino | Government Health IT | October 4, 2012

City employees in Billings, Montana are now able to access their personal health records online as part of pilot project stemming from the Office of the National Coordinator's Consumer Innovation Challenge. Read More »

More Research Volunteers Are Getting Their Medical Test Results. Should We Cheer — or Worry?

Kat McGowan | STAT | December 1, 2016

Volunteer for a clinical trial and your body will be poked, prodded, scanned, and analyzed. But you’re unlikely to get any of the results. A small but influential band of activists has been pushing hard to change that — and they’re starting to get traction. The research establishment has long opposed giving volunteers access to their data, even though that’s supposed to be part of the arrangement. Some worry that it’s too easy for laypeople to misinterpret test results, while others maintain that it’s a waste of resources to organize data for individual review...

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NASCIO Recognizes Outstanding Achievements in State IT: Finalists Announced for 2017 NASCIO State IT Recognition Awards

Press Release | National Association of State Chief Information Officers (NASCIO) | August 3, 2017

The National Association of State Chief Information Officers (NASCIO) has selected 32 finalists across 11 categories for the State IT Recognition Awards. This is the 29th consecutive year NASCIO has honored outstanding information technology achievements in state government through the awards. Projects and initiatives from NASCIO member states, territories, and the District of Columbia were eligible for nomination. NASCIO members served as volunteer judges to review the 100+ submissions, narrowing the nominees down to finalists in each category. From these finalists, a recipient will be announced during an awards dinner at the upcoming NASCIO Annual Conference this October in Austin, Texas...

New Blue Button Directory Unveiled at HIMSS17

Press Release | National Association for Trusted Exchange (NATE) | February 20, 2017

The National Association for Trusted Exchange (NATE) today unveiled NATE's Blue Button Directory (NBBD) at the HIMSS17 annual conference in Orlando, FL. This FHIR-based solution is the newest prototype being developed by NATE to make it easier for consumers and providers to share data to improve outcomes. Consumers are actively requesting their medical records and providers want to share them but there is often a workflow disconnect between the two. As part of the Federal Health Architecture's vignette in the HIMSS17 Interoperability Showcase (Level 2 | Lobby F | Tangerine Ballroom | Booth 9000), NATE and its partners are demonstrating how a simple enabling infrastructure can alleviate this problem...

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New Open Source App Helps Protect Children Displaced by Conflict

Press Release | UNICEF | January 31, 2017

A life–saving service for vulnerable children caught up in crises is now available to government, aid agencies and social service workers through an open source app developed by UNICEF and its partners. The app known as Primero, facilitates the secure collection, storage and sharing of data to improve child protection, incident monitoring and family reunification services by key players in the humanitarian sector. The software is particularly crucial to the work of social workers in emergency situations to support children displaced by conflict...

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New Open-Source GUI Can Display Multiple EMRs

Anne Zieger | Hospital EMR & EHR | May 30, 2013

A non-profit focused on HIT has released an open-source graphical user interface which will provide a common view for patient information from multiple EMRs — a very useful trick if the software delivers what it promises. Read More »

NEXTGEN Cassava Project Sets Precedent For Open Access Data Sharing In Agricultural Research

Staff Writer | IPP Media | May 4, 2013

Six months after the launch of the $25.2M NEXTGEN Cassava project at Cornell University, scientists on the project have released Cassavabase, a database that promotes open access data sharing. Read More »

NIH Bets Big Bucks On Big Data

Joseph Marks | Nextgov | July 23, 2013

The National Institutes of Health plans to invest up to $96 million over four years to put big data to work solving persistent health riddles, the agency said Monday. Read More »

No Longer ‘Publishing As Usual’

Piers Bocock | ICT Update | June 1, 2013

Despite the spread in use of ICTs in agricultural research (see ICT Update 70) information is still constrained by the way it is published and the degree to which it is open. Piers Bocock of CGIAR shares how his organisation is addressing this. Read More »

Number of Public HIEs Drop, Bringing Viability into Question

Greg Slabodkin | Health Data Management | July 8, 2016

Despite federal funding that aided their creation, the number of community and state health information exchanges is declining as HIEs struggle to remain financially viable now that seed money has dried up. Those are among the results of a new national survey published in the July issue of Health Affairs that tracked community and state HIE efforts soon after federal funding ended. “We found 106 operational HIE efforts that, as a group, engaged more than one-third of all U.S. providers in 2014,” states the study’s authors...

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Obama Administration Announces Key Actions to Accelerate Precision Medicine Initiative

Press Release | The White House | February 25, 2016

A year ago the President announced the launch of the Precision Medicine Initiative to accelerate a new era of medicine that delivers the right treatment at the right time to the right person, taking into account individuals’ health history, genes, environments, and lifestyles. Precision medicine is already transforming the way diseases like cancer and mental health conditions are treated. Molecular testing for cancer patients lets physicians and patients select treatments that improve chances of survival and reduce adverse effects...

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On the Importance of Health Information Technology in Developing Areas

Health Information Technology (Health IT) is a broad term that describes the technology and infrastructure used to record, analyze, and share patient health data. Various technologies include health record systems, including personal, paper, and electronic; personal health tools including smart devices and apps; and finally, communities to share and discuss information. Some of this technology can tell the patient whether they need to go on a diet too, and most of the time the golo diet is what they should be doing or they should be taking Gynexin pill for gynecomastia like most men should be doing...

On the Road

Over the past few months, I’ve been in England, China, Denmark, New Zealand, and Canada. Each of them is rethinking their healthcare IT strategy and is not entirely satisfied with past progress. I’m often asked by senior government officials to help harmonize IT strategy at the country level. That I can do. I’m also asked to discuss the US Presidential campaign, but that defies rational explanation. I frequently say that healthcare IT issues are the same all over the world. Here’s a few common observations..