In June 2020, the Secretary-General of the United Nations published a "Roadmap for Digtal Cooperation." In this report, he expanded on recommendations made a year before, calling on all actors, including the Member States, the United Nations system, the private sector, and others, to promote digital public goods. He says to realize the benefits of increased internet connectivity, open source projects in the form of digital public goods must be at the center. While the term "digital public good" appears as early as April 2017, this report offers the first broadly accepted definition of digital public goods...The Digital Public Goods Alliance (DGPA) translated that definition into a nine-indicator open standard that we hope will serve as a comprehensive, shared definition to promote the discovery, development, use of, and investment in digital public goods for a more equitable world.
Open Data
See the following -
Researchers Call For Open Access To Autism Diagnostic Tools
Most of the world’s children live in low- and middle-income countries. Yet few epidemiological studies of autism prevalence have been conducted in these countries, and little is known about how the symptoms of autism vary from culture to culture. Read More »
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RSNA Building an Open Repository of COVID-19 Imaging Data
The medical imaging community around the world is uniting to help address the COVID-19 pandemic. The Radiological Society of North America (RSNA) continues to build on its extensive body of COVID-19 research and education resources, announcing a new initiative to build a COVID-19 Imaging Data Repository. The open data repository will compile images and correlative data from institutions, practices and societies around the world to create a comprehensive source for COVID-19 research and education efforts. The image hosting, annotation and analysis framework will enable researchers to understand epidemiological trends and to generate new AI algorithms to assist with COVID-19 disease detection, differentiation from other pneumonias and quantification of lung involvement on CT for prognosis or therapy planning.
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RSNA Launches International COVID-19 Open Radiology Database
The Radiological Society of North America (RSNA) and the RSNA COVID-19 AI Task Force today announced the launch of the RSNA International COVID-19 Open Radiology Database (RICORD). RICORD is envisioned as the largest open database of anonymized COVID-19 medical images in the world. More than 200 institutions around the world have expressed their interest in participating. The database will include supporting clinical information and expert annotations. It will be freely available to the global research and education communities.
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SafetyData.gov Review: Long On Text, Short On Data Tables
"The liberation of government datasets is important in itself, but data are truly powerful when used in the development of informative apps." So proclaimed Todd Park, Brian Forde and Jo Strang in a recent White House Blog, Safety Data Jam connects Tech Innovators with Public Safety Officers. Read More »
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Sage Bionetworks Releases First-of-its-Kind Data from Parkinson’s iPhone Study
Sage Bionetworks, a nonprofit biomedical research organization, today released an unparalleled dataset that captures the everyday experiences of more than 9,500 people to help speed scientific progress toward treatments for people with Parkinson’s disease. The dataset, which consists of millions of data points collected on a nearly-continuous basis through the iPhone app mPower, will provide researchers with unprecedented insight into the daily changes in symptoms and effects of medication for people with Parkinson’s.
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Sage Commons Congress 2012
I was at the Sage Commons Congress the last few days. Meetings should be full of challenging new ideas and full of spontaneous discussion. [...] This congress was very interesting, driven by the passion of those people taking part to do science in new ways. Read More »
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San Francisco Set To Appoint Chief Data Officer In Revised Open Data Legislation
San Francisco will announce proposed revisions to open data legislation Monday that includes the creation of a chief data officer who will serve as the primary evangelist for making city data freely-available to the public. Read More »
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San Francisco's Plan: Open Government, Open Data, Open Doors to New Business and Better Services
Headd has been urging local governments to think of open data as an economic development tool for some time. In particular, he has argued in the past that financially strapped states could leverage the data in lieu of loans and grants to stimulate the creation and growth of small businesses. Read More »
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Scientific Data Should Be Shared: An Open Letter To The ARC
Science (real science, not the summaries in popular books and the media) is needlessly closed to the outside world. Worse, it is closed within itself, with every lab its own silo, and little sharing of data or materials. Read More »
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Self-Preservation Chokes Open Science, Kills The Patient
Arguably the one area that stands to benefit the most from open and shared data is science. Yet researchers are reluctant to do it. Why? Because the reward model for scientific discovery is chaining them to dollars they can't pocket otherwise. [...] Read More »
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Sensored Meetup #10 At A Glance: Data, Open Source And Hardware Startup Strategy
I can’t believe last night was already the 10th edition of the Sensored Meetup. I went to the first one more than a year ago, which was a really great gathering of sensor experts. It’s this kind of meetup where you end up learning tons of things by just being around, and where everyone is working on super ambitious and high-level products. Read More »
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Sequencing, cloud computing, and analytics meet around genetics and pharma Bio-IT World Shows What is Possible and What Is Being Accomplished
Bio-IT World shows what is possible and what is being accomplished...last week I took the subway downtown and crossed the two wind- and rain-whipped bridges that the city of Boston built to connect to the World Trade Center. I mingled for a day with attendees and exhibitors to find what data-related challenges they’re facing and what the latest solutions are. Here are some of the major themes I turned up...
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Setting A Standard For Digital Public Goods
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Seven For ‘13
Ewan Davis looks back at 2012 and identifies the trends – from hackdays to open source to patient-held records – that will reshape NHS IT in 2013 and beyond. Read More »
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Share Your Genetic Story with openSNP
With personal genomics services like 23andMe and deCODEme, we can ship away a cotton swab with some spit on it, and explore our genetic connections even more closely. If we open up and share that genetic data with one another, there's a lot we could discover about human phenotypes: how our height, eye color, and preferences for certain foods connect us and shape our lives and health. Read More »
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